Wow what an appointment!

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Today we had Lou’s first Occupational Therapy appointment, she was definitely in her ‘worse case’ scenario mode to be observed, after having a massive meltdown after coming home from school, I think the change of routine may be finally hitting her. And being an afternoon appointment, she was tired and non-compliant. I needed the OT to see this. It was confirmed that Lou certainly has Sensory Processing Disorder, she is a huge ‘sensory seeker‘ and has quite a substantial case of ‘Hyper-mobility‘ in her joints. As she placed her hands onto the examination couch the amount of flexibility in her joints was very noticeable. What this essentially means is that Lou’s joints move more than say, my own, and she has to work harder in aspects such as gross motor skills.

The OT noted that Lou is a very hyperactive child, who is always on the go, always searching for sensory experiences, she stomped around the room and tried to escape from the room to run upstairs in the building several time, I could see that the OT was nodding, and say “Yes” she’s seen this before and it all seemed to make sense! It was like a light bulb moment to have someone agree with what I’ve been harping on about since Lou was 18 months old! As Lou rolled over a special tube, I told the OT that the ‘special tube’ to roll over at home is usually her sister, Moo.

I wanted to ask so many questions, but it was so difficult to talk and keep half an eye on Lou as she was rolling over the examination couch! As soon as we reached home, the OT called me and arranged to visit my home to talk in more detail whilst Lou is at school. what we will also get is further support in terms of a course to explain more and further support in terms of activities that can be done to bring Lou’s level of activity down to a mid-level, as she is functioning on such a high level of activity at the moment and she has to learn to regulate herself, all fascinating to hear. It is definitely recognised that Lou is holding in her sensory overloads all day as she wants to comply and that’s why we see such as escalation in her behaviour once she reaches home, in a place where she feels comfortable to do so. This doesn’t solve the bruises I receive during a meltdown, but if activities are put into place throughout the day, it should hopefully help to improve the situation at home – fingers crossed!

We’re getting there a bit more now, amazing things happen once people start to listen, understand and believe! A bit more light at the end of this tunnel!

Thanks for reading – I can’t praise my family and friends enough for their help and understanding. 🙂

 

2 thoughts on “Wow what an appointment!

  1. Our 5 year old has SPD, recommendations from OT have really helped. He now has a trapeze swing indoors, weight therapy, lots of fidget toys and the improvement is huge. He also holds it all in at school and then has melt downs at home. How ever since myself and OT made suggestions at for school to do he has been better at home. Might be worth getting school help even though your daughter isn’t seen as struggling obviously whilst there .

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    • We discussed her being observed in school, we’re lucky that the school are very on board and they have already said they can incorporate activities throughout the day to ensure she levels out a bit more throughout the day, they’ve made a sensory box and have a bubble tube in the class – I think they can tell how frazzled I am when she explodes at home! X

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